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Why Some Folks Say You Shouldn’t Do the Ice Bucket Challenge

I actually wasn’t sure whether I was going to do the Ice Bucket Challenge. But then I started hearing some of the criticisms and all about why this was such a bad idea. The top ones were 1) it’s just narcissistic self righteousness 2) this won’t cure ALS 3) most people won’t do anything beyond this to help find a cure for ALS 4) everyone else is doing it 5) ALS Association supports embryonic stem cell research.

So, as part of the Ice Bucket Challenge, I’m going to actually address these points. For those of you who don’t know, ALS is a disease where your body becomes your own tomb. As the nerve cells stop working, you lose the ability to move. Day by day, you lose more and more strength. You cannot taste. In some cases, you cannot smell. And eventually, though your mind will remain sharp as ever, your body will simply stop responding. The only part of your body you will be able to move is your eyes. I’ve decided that as part of this challenge, I’ll actually be doing another blog post that goes into more detail on this point. But now let’s get into the more popular reasons why you shouldn’t be doing the Ice Bucket Challenge.

It’s Just Narcissism

There’s been a number of articles and blog posts spread around the web about how this is just the latest in a long line of social media based attempts at altruism that are nothing more than masks for narcissism. “Look at me! I’m doing something to help other people! I’m a good person!”

Okay, maybe it is. Matters of the heart are important, but I would actually say on something like this, “who cares?” Unlike in some social media campaigns which have no quantifiable results (though perhaps other unseen benefits), the Ice Bucket Challenge has raised millions of dollars. I have heard more and more people talking about ALS than ever before. ALS wasn’t that well known in popular culture despite how horrible it is.

Let God judge the heart. If good is coming from it, let the good come. The heart is a big deal, don’t get me wrong. But it’s our hearts in what we do that are at issue, not others. And actually, our own hearts are the only ones we can examine.

It Won’t Cure ALS

Oh….I didn’t realize that one of the requirements of participating in an awareness event or a charity or a fundraising event was the conclusion that it must succeed in curing the disease.

Sarcasm off. ALS is a serious disease for which there is, as of yet, no cure. Those who are diagnosed with it can only hope to perhaps delay the onset of the symptoms or extend their lives, but it is a death sentence. A long, slow, and painful death. But if our standard for raising awareness and researching diseases is the guarantee that the cure be found, then why are we researching cancer or a number of other diseases?

Research and fundraising are both necessary before the cure can typically be found. And so while it may not cure ALS yet, it may eventually lead to it. How else would the cure be found except by accident?

It Won’t Last; These People Won’t Do Anything Else

I did not realize that when one participated in an awareness movement or assisted with a charity or helped with a cause that it was a lifelong commitment. Hmmm…fascinating.

Sarcasm off. Once again, I find this to be a strange standard to require. I have participated in numerous causes. In some cases, I have continued to work with them, investing what I can in time, energy, and money. Others I only assisted with once or twice. Did that mean that the efforts I and others expended were somehow irrelevant? Not at all! It helped in that instance.

Now, if I were to look at this in the best possible light, these critics might actually be trying to encourage folks to participate further. Help out a family with ALS. Continue to make donations. Continue to raise awareness and so on.

There’s nothing wrong with that, and I would say that participating in the Ice Bucket Challenge could be the start for other participation later on down the road. Pouring a bucket of ice water on your head doesn’t mean that you won’t ever do anything else. Will most of the folks who participated in this do more to support those suffering from ALS or to support the research? I don’t know. Maybe not. But again, is continued participation the requirement? If you do decide to participate in this, then do seriously consider what you will do beyond this. If you can do more, then do more. And encourage others to do the same.

Lots of Other People Are Doing It; I Don’t Want To Be Like Everyone Else

A number of posts I’ve seen lately have decried others for “jumping on the band wagon” and “giving in to peer pressure.” Maybe some people are doing this just to fit in. But others may be choosing to participate because they actually want to do something to raise awareness and assist with this process.

The fact is that if you are a person who thinks for herself, then this is irrelevant. Whether everyone is doing it or no one is doing it. Otherwise, you really aren’t someone who thinks for yourself. You’re just someone who reacts against what everyone else is doing, and that is just as bad as being someone who jumps on the band wagon.

The Donations Are Going to Fund Embryonic Stem Cell Research

[As a side note, a lot of folks are doing both the challenge and donating to an organization to provide for the families, research, and so forth. In fact, that’s what I thought you were supposed to do at first. And most of the folks I know personally who are doing this are doing both.]

For individuals who are pro life, this is a more serious allegation, and it is probably one of the more serious charges against participation. I’m not going to get into all the specifics and analyses of embryonic stem cell research, but if this is your reason for not participating or telling others not to participate, you might want to reconsider.

First of all, while the ALS Association does potentially use embryonic stem cells (supposedly donated), you can request that the organization not use your funds in any way that uses embryonic stem cell research. You can’t do this on the website. The donation page does not allow for that qualification that I can see. But you can allegedly mail in your donation with a letter that makes that request, and they will honor it. I have not yet heard back from the association to confirm this officially.

Second of all, there are other organizations to which you can donate the money. (As a Christian, I strongly oppose the belief that just because an organization might do something with which my faith disagrees I am somehow released from doing anything.) One of these organizations that funds ALS research without using embryonic stem cell research is the John Paul II Research Institute.

If you’re concerned about the effectiveness of the funds, you can also consider helping out the families who are struggling through ALS. Just because there’s no cure for the disease doesn’t mean that the families don’t wrack up enormous expenses. The entire family suffers in this disease. It is emotionally, physically, and mentally agonizing. ALS Guardian Angels helps to provide for these families, provide grants, and so forth.

You can also look to see if there are any families within your community who are enduring through this disease or local charities that work with this. Nothing says that you have to give your donation to the ALS Association. You just have to get creative.

What Would You Have People Do Instead?

Some feel that folks should just donate the money and shut up. But that’s actually the incredible thing about the Ice Bucket Challenge. It went viral. On the news each day and on my Facebook newsfeed, I see more and more people doing the challenge and talking about ALS. Now, yes, some celebrities who have done this have not provided much information on ALS or that you should donate. But others have. More importantly, just making a donation would not have made this stand out at all. It would have just been like countless other organizations and good causes that all want your money. If you had heard that one of your favorite celebrities or friends had donated money to an organization to cure a disease, you might think that that person is a great individual, but it probably wouldn’t have caught your attention as much as that person dumping a bucket of ice on his head.

As of August 19, the Internet campaign has raised more than $15,000,000 And you want to know something else? I’m hearing people talk about ALS! Folks are actually looking it up. They’re discussing it. And that is incredible!

So What If I Don’t Like This Challenge?

Frankly, that’s on you. You don’t have to participate in it if you don’t want to. Worst case scenario, someone will show up and dump a bucket of ice water on you, but depending on your state, you might even be able to sue him for battery.

Maybe you’re just sick of seeing people dumping ice water on themselves. Fine. I can understand. But it will go away in time.

Consider also what else has been on your Facebook newsfeed. I’m going to guess lots of cats, funny photos, perhaps even the “pick 5 pictures that make you feel beautiful challenge” and others. At least people are trying to make a positive difference here.

Let me put this bluntly. If all you’re going to do is complain and not offer another solution, you are not part of the solution. You are part of the problem. You don’t have to do the Ice Bucket Challenge. It doesn’t make you a bad person if you don’t want to participate. Let me make that very clear. You have every right to say no and not feel guilty. You can make your donation in private, say a prayer for those suffering from this disease, and carry on with your life.

But the fact that you dislike the challenge does not mean that you should harass those who are participating in it. Calling them sheeple, stupid, and narcissistic when you’re just sitting on your backside doing nothing is certainly not any better.

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